(Originally posted in Facebook on February 21, 2019)
Last night wasn’t a ton of fun. M was in a lot of pain from the three attempts to draw spinal fluid and the only pain reliever he can take is Tylenol. Unfortunately, it didn’t seem to help much. I had hoped he would feel well enough to go to work today and get his mind off of it, but he didn’t. And now, we’ll try again tomorrow.
The grilled cheese and tomato soup last night was a big hit. I don’t think the temperatures got out of the 30s yesterday, with a steady, cold rain, so hot soup and a sandwich was a perfect dinner. M’s limited movement last night really pointed out how much his appetite has increased lately, because he was asking me to get him more and more things to eat all night long.
I noticed, when I started getting up with him and cooking his breakfast every morning, how much he was packing to take for his lunch to work every day. He’ll make a sandwich with turkey deli meat and mayonnaise, then pack two 4-oz. applesauce cups, 2 of the large P3 portable protein packs (they have a meat, a fruit and nuts) 2 bottles of muscle milk or another protein drink, 2 Atkins bars and 2 bottles of sparkling water. And every bit of that is gone by the time he gets home.
He’ll eat a good dinner and then snack constantly until bedtime. If I say anything to him, he tells me that he’s hungry.
He’s heavier than he was a year ago, but just by five or so pounds. I’m glad he’s eating relatively healthy things, but I wish he weren’t eating so much of them. We can’t have ice cream or any kind of sweets in the house because he’ll start digging into them – and that was never a problem before.