Dementia.
I’m learning that it’s not just memory loss.
It’s brain failure. A failure of the brain.
And we, the “normal” people who interact with those who have this failure of the brain, owe it to them to recognize that they can’t help it.
If someone had heart failure, we wouldn’t walk up to them and say “Why are you breathing like that? You just aren’t trying. You need to work on your breathing and try harder.”
So why do “normal” people walk up to someone they supposedly love with dementia and say things like “do you know who I am?” or “What’s my name?” or “Come on, you can get it.”
They can’t. They don’t know. And if they do know, they don’t know how to express it.
I’ve found some wonderful videos online by Teepa Snow, a dementia care expert, trainer and consultant with over 40 years’ experience. She has fabulous advice, not only on dealing with dementia, but also on taking care of yourself as a care giver.
Here’s a link to a good video to get started:
We need all the help we can get.
Thinking of you as you continue this journey. TSnow’s wisdom was invaluable to me while in a caregiver role. Do take care of yourself every chance you get!! Always in my prayers. -Julie
Thank you!! Knowing there are those who have walked this road ahead of me really does help. Why is taking care of ourselves the hardest thing to do?
This is spot on . Heartbreaking memories of how well meaning ppl would ask/say things to my beloved grandmother.
We just have to educate! When we know better, we do better! Sending love!
Teepa Snow is a great resource for sure. I’ve attended a conference of her’s. Do you know about JUMC’s Alzheimer’s Caregivers Support Group? Laura Gulledge built it and I’m a co-facilitator. Unfortunately the meetings are virtual right now but they may be some help to you. I can put you in contact with Laura if you’re interested. ❤️
I was interested in the JUMC meetings, but they were during the work day, and I work in Asheboro. I can’t do anything before 6 pm. I’ve also found most of the support groups trend toward older people with dementia, and when I’m talking about problems with keeping him off his bike – the rest of the participants have no idea what I’m talking about b/c they’re all in their 80s. I’d love to find one for younger-onset caregivers.